17 September 2018

It was great to welcome back our previous members (after the summer holidays) to the first of our meetings for 2018-2019 and to also welcome a number of new members to the group. This is the start of our 3rd year and we hope to continue in the same vain by offering information, support and an opportunity to have a friendly chat with others living with a variety of Interstitial Lung Diseases (ILD’s)…. and have a nice cup of tea, coffee and some nibbles, of course!

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IPF AWARENESS WEEK

This week is also the start of IPF Awareness Week. Somehow this year seems different as there has been more coverage of IPF in the media. Channel 4 covered a piece on early diagnosis and the restrictive access to anti-fibrotic medication and can be viewed here.

BBC Radio Wales also did an interview with John Mason, who has lived with IPF for over 7 years and you can listen to it below.

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Over the next few months the Taskforce for Lung Health will be working on finalising the 5 year strategy report, which will be published before the end of the year and this period will coincide with increased media coverage across all formats (print, online and national broadcasts).

Our next meeting will be on 22 October 2018 and we look forward to seeing you all then.

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