Welcome to your support group

ILD Support group image 1    ILD Support group image2

Welcome to the St. George’s ILD Support Group which is open to patients, relatives and friends. You are all welcome to join us for a regular, friendly and supportive chat over a ‘virtual’ coffee or tea.

In addition to undertaking various Pulmonary Rehabilitation (PR) techniques and exercises, we will have Q&A with invited Guest speakers who will discuss a number of relevant topics concerning living better with ILD.

During this difficult time the group now meets ‘virtually’ every 2 weeks, usually on a Monday at 4pm, – there are no August meetings due to summer holidays – but please check below for exact dates.

Formed in September 2016 our group has been meeting regularly since then and we’re looking forward to another supportive and active season for 2020-2021 – details of our next meeting are below.

If you have any queries please do not hesitate to contact us by using the contact form on this website.

We look forward to meet you at our next meeting.

Thank You!

We would like to express our gratitude to all of the wonderful NHS staff (clinical, auxiliary, support and volunteers) from all departments and throughout who are working so hard to treat and support patients and their families at this difficult time. 

Next Meeting

We will be hosting our next ‘Virtual’ ILD Support Group webinar
on Monday 5th October, starting at 4:00pm.

If you would like to join the webinar, please contact us by using the contact form.
and we will send you the link and joining instructions.

Source: scienceforsport.com

Pulmonary Rehabilitation with Faye Tobby

A combination of seated and standing exercises for a more challenging  session.

 


Seated only exercises for a light to moderate session.

 

Upcoming topics

  • Exercise and ILD
  • Ambulatory oxygen and long term oxygen therapy (LTOT)
  • Understanding x-ray and HRCT scans
  • Better understanding of the various long term conditions of all ILD’s
  • The role singing plays in better lung health
  • Diet and ILD
  • Memory and techniques
  • Taskforce for Lung health – update
  • Techniques for managing your cough
  • Support for the newly diagnosed and emergency pack for exacerbation prevention
  • Pulmonary rehabilitation (PR)
  • Symptom Management for ILD Patients
  • Connective tissue and Lupus disorders
  • Pacing for improved energy levels
Last edited: 29 September 2020