Useful links

  1. In this section you will find links to a wide range of information relating to organisations, accessing current clinical trials, ILD guidelines, research articles and many others online resources relating to Interstitial Lung Disease (ILD).

We endeavour to ensure the accuracy of the information provided, however, if you do have concerns with any information on this site I would be grateful if you could let me know by using the Contact form and I can investigate further and update or amend if necessary. Otherwise, I hope you will find the information below useful. Thank you.

Table of contents:

  1. Organisations and groups
  2. Personal Independence Payment (PIP)
  3. Clinical trials – Currently recruiting
  4. Travel insurance
  5. IPF FAQs
  6. ILD Guideline and recommended diet and exercises
  7. 6MWT guidelines and documentation
  8. Telomerase research articles
  9. Breathing methods and techniques
  10. NHS Fitness Studio
  11. Improving Air Quality Initiatives

Pulmonary Fibrosis Foundation Summit November 2017

Organisations and groups

Personal Independence Payment (PIP) & Other Financial Assistance

Clinical trials – Currently recruiting

Travel insurance companies in the UK who cater to travellers with pre-existing medical conditions

FAQs on Idiopathic Pulmonary Fibrosis (IPF)

What is Idiopathic Pulmonary Fibrosis (IPF)?

(Source: HealthSketch)

Understanding Spirometry and Lung Function

(Source: Armando Hasudugan)

[ – In patients with systemic sclerosis a ratio between Forced-Vital-Capacity (FVC) and diffusing capacity of carbon-monoxide (DLCO, FCV%/DLCO%) >1.5 could be a predictor of pulmonary hypertension (PH). The aim of this study was therefore to evaluate whether this index could be used in patients with PH, regardless of etiology.]

Related articles:

It is unclear how or if the ratio of FVC/DLCO can also be used as a reliable indicator for early diagnostics for Pulmonary Hypertension (PH) or for early indication of increased Pulmonary Arterial Pressure (PAP) in IPF patients.

So what does IPF sound like when recorded using a high quality stethoscope?

ILD Guideline and recommended diet and exercises

6 Minute Walking Test (6MWT) Guideline

Research articles concerning Telomerase, TERC, TERT, RTEL1, PF, IPF and FPF

Breathing methods and techniques

Guided relaxation to help with your breathing:

The following recording is a guided relaxing exercise to help control your breathing. Before playing the recording be in a relaxed and comfortable place and make sure that you will not be interrupted during the session.

NHS Fitness Studio

Improving Air Quality Initiatives

Last updated on 13 June 2022