16 October 2017
On 16th October Steve Jones (Chair of the trustees- Action for Pulmonary Fibrosis) attended St Georges ILD Support Group and shared his own personal journey with IPF over a period of almost 10 years. Steve then presented a very interesting and informative talk about the charity and its work to support patients affected by Pulmonary Fibrosis.
Steve highlighted the importance support groups are to patients, families and carers. That is why it is one of Action for Pulmonary Fibrosis (APF) top priorities since the charity started in 2013. There are currently 45 support groups which have formed through the support of APF, with the goal of the charity to ensure that all patients affected by pulmonary fibrosis in the UK have access to a support group by 2022. This will need over 100 groups to be able to achieve this. Lorna McLauchlan is the support group co-ordinator at the charity and Lorna and Steve are working hard to engage with health professionals across the country to develop and maintain effective groups so that we can provide this vital support.
Select the image or link below to view the presentation.