ILD Support Group meeting

21 November 2016

The second meeting of the ILD Support Group took place at St Georges Hospital on Monday 21st November between 16:30 – 18:00.

The group welcomed two guest speakers Luke Morton-Holtham,physiologist and researcher at Kingston University, and Helene Bellas Henry, Specialist Physiotherapist at UCLH. Helene also runs a pulmonary rehabilitation courses for auto-immune Interstitial Lung Diseases.

 

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Luke discusses his current research with the group

Luke discussed his current research into ILD patients and specifically those diagnosed with primary sarcoidosis.

For further information on Sarcoidosis please visit the British Lung Foundation’s website

 

 

 

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Helene demonstrates the Buteyko technique

Helene then took the group through a practical session using the Buteyko breathing technique which comprised a series of breathing exercises and can be used for a wide range of respiratory conditions.

This was all very new for the group participants and took some getting used to. Select the following link for a detailed explanation of the Buteyko breathing technique.

The sessions were followed by Q&A’s and some lively discussion and some well deserved refreshments!

 

 


 

ILD Support Group Meeting

Inaugural Meeting – 19 September 2016

The first meeting of the St George’s ILD Support Group took place at St George’s hospital on 19 September 2016 between 16:30 – 18:00.

The meeting was organised and opened by Dr Dimitra Nikoletou, Associate Professor, Faculty of Health, Social Care and Education (Joint Faculty between St George’s and Kingston University).  Dimitra welcomed all attendees including Ruth Sabella, IPF Project Manager from the British Lung Foundation (BLF) who updated the group on the work of the BLF and specifically in relation to ILD. The group was then introduced to Claire Emery, who took participants through a practical session demonstrating a series of specific yoga breathing techniques to help patients with ILD.

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Our first St George’s ILD Support Group meeting coincided with the first day of ‘World IPF week 2016‘. The World IPF week was created in 2012 as an initiative to raise awareness across the globe that Idiopathic Pulmonary Fibrosis (IPF), one of the many types of ILD, is a rare and poorly understood lung disease.

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The group plans to hold a series of other practical and information exchange sessions in forthcoming meetings. For further information about the group and for dates of forthcoming meetings please visit the support group’s website at https://ildgroupstgeorges.com.

To contact the group directly with any queries, please use the Contact Form. Thank you.