ILD Support Group Meeting

29 April 2019

Theresa Nash
Theresa Nash – Director of Heritage2health

It was great to meet up with the group as spring seems to be getting its act together at last! It also seemed a most appropriate time to think of all things out doors and to this end we were joined by Theresa Nash, Director of Heritage2health. Theresa introduced the group to the purpose of Heritage2Health (H2h) and explained that it was a system developed by nurses through Kingston University and St George’s University of London, School of Nursing, Faculty of Health, Social Care and Education, set up to encourage collaborations between the healthcare and heritage sectors, with the aim of facilitating experiences for patient groups and those who may feel socially isolated.

Ham House Event – 28 June 2019

Theresa then invited group members to participate in the main summer event at Ham House on Friday 28 June. This is a free event and was very well received. The committee has since agreed to fund door to door transport for those interested in taking part. Entertainment, refreshments and personal assistance will also be available at no cost, so really there is no reason not to be there on the 28th!

 


Anne Whitting with members of the ILD Support Group
Anne and ILD Support Group Members

A BIG Thank You!

The support group were very grateful to Anne Whiting, Secretary to the Trustees of The Friends of St Georges, for the very generous donation of £1500 to the group. This will be a huge help with the groups running costs in holding the monthly meetings and providing the other various activities we arrange for members and ensuring the continued support to our existing and new members, their families, friends and carers.
Thank you!


 

ILD Support Group Meeting

18 March 2019

Image of Dr. Dimitra Nikoletou
Dr. Dimitra Nikoletou

The group had another great meeting on Monday and we were delighted to have Dr. Dimitra Nikoletou update the group on her recent trip to the 8th International Meeting on Pulmonary Rare Diseases and Orphan Drugs which took place in Milan, Italy. Dimitra highlighted the key findings from her research paper, which she presented and entitled…

“Differences in symptoms and cardiopulmonary responses to Treadmill v’s Cycle cardiopulmonary exercise testing and comparison with the 6MWT in Interstitial Lung Disease (ILD)”.

The presentation was very interesting and particularly to the group as a number of attendees had taken part in the original study, so it was very satisfying to see the final results nearly 3 years from the start of the study… the general feeling from the group was that It was worth the wait!

As ever there was lively discussion following the presentation, with many questions for Dimitra to answer as well as our usual general discussion and chat over some lovely and obligatory carrot cake and coffee!

With the Easter holidays fast approaching the next meeting of the ILD Support Group will take place on…

Monday 29 April at 16:30, Please note the different date for April and put it in your calendar.

See you then and keep well!