ILD Support Group meeting

30 January 2017

The third meeting of the ILD Support Group took place at St Georges Hospital on Monday 30th January 2017  between 16:30 – 18:00.

The meeting was opened by Dr Dimitra Nikoletou with the announcement that the group will meet every month from January with a 2 month break in July and August for the summary holidays. A complete list of dates and topics will be published in due course, however in the meantime do take note of the forthcoming dates for your calendar listed below.


Dates for your Calendar:

27th February 2017

20th March 2017

24th April 2017

22nd May 2017

19th June 2017


Dimitra presented this months topic on ‘Self-Management of Chronic Conditions‘. The presentation covered a range of chronic, long term conditions (LTC) such as stroke, MS, mental illness and other chronic conditions and it was clear that there is much commonality across all LTCs and there is much we, as patients, can do to manage our own specific condition(s) by setting achievable goals specific to us and to take back control and improve our quality of life.

You can view the slides from the presentation below. Use the ‘space bar‘ to pause/play the presentation.

Following the presentation there was a discussion among the group over a nice cup of tea and some very nice biscuits and cakes from Singapore! We were then joined by Ms Jennifer Brimley, the relatively newly appointed ILD specialist nurse. Following a brief introduction Jennifer informed the group about the various research and trials currently being explored locally and across a number of partner institutions such as The Brompton, St Mary’s, Charring Cross and Queen Mary’s. It was very interesting and encouraging to hear of the increased research underway into Interstitial Lung Disease (ILD).

The meeting was brought to a close at 18:10. We look forward to welcoming you at our next meeting on Monday 27 February. Until then keep as healthy and active as you can!


 

ILD Support Group meeting

21 November 2016

The second meeting of the ILD Support Group took place at St Georges Hospital on Monday 21st November between 16:30 – 18:00.

The group welcomed two guest speakers Luke Morton-Holtham,physiologist and researcher at Kingston University, and Helene Bellas Henry, Specialist Physiotherapist at UCLH. Helene also runs a pulmonary rehabilitation courses for auto-immune Interstitial Lung Diseases.

 

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Luke discusses his current research with the group

Luke discussed his current research into ILD patients and specifically those diagnosed with primary sarcoidosis.

For further information on Sarcoidosis please visit the British Lung Foundation’s website

 

 

 

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Helene demonstrates the Buteyko technique

Helene then took the group through a practical session using the Buteyko breathing technique which comprised a series of breathing exercises and can be used for a wide range of respiratory conditions.

This was all very new for the group participants and took some getting used to. Select the following link for a detailed explanation of the Buteyko breathing technique.

The sessions were followed by Q&A’s and some lively discussion and some well deserved refreshments!

 

 


 

ILD Support Group Meeting

Inaugural Meeting – 19 September 2016

The first meeting of the St George’s ILD Support Group took place at St George’s hospital on 19 September 2016 between 16:30 – 18:00.

The meeting was organised and opened by Dr Dimitra Nikoletou, Associate Professor, Faculty of Health, Social Care and Education (Joint Faculty between St George’s and Kingston University).  Dimitra welcomed all attendees including Ruth Sabella, IPF Project Manager from the British Lung Foundation (BLF) who updated the group on the work of the BLF and specifically in relation to ILD. The group was then introduced to Claire Emery, who took participants through a practical session demonstrating a series of specific yoga breathing techniques to help patients with ILD.

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Our first St George’s ILD Support Group meeting coincided with the first day of ‘World IPF week 2016‘. The World IPF week was created in 2012 as an initiative to raise awareness across the globe that Idiopathic Pulmonary Fibrosis (IPF), one of the many types of ILD, is a rare and poorly understood lung disease.

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The group plans to hold a series of other practical and information exchange sessions in forthcoming meetings. For further information about the group and for dates of forthcoming meetings please visit the support group’s website at https://ildgroupstgeorges.com.

To contact the group directly with any queries, please use the Contact Form. Thank you.